There are many amazing local support groups operating across the country.

"The Croakies" Head and Neck Cancer Support Group

Patients and their families welcome at Bradford Cancer Support Centre over the road from BRI every 2nd Friday of each month between 12 - 2 pm

Macmillan Nurse: Sarah Cost

Macmillan Head & Neck Cancer Nurse Specialist

Bradford Teaching Hospitals Trust

Extension Block Level 1, Room 2

St Lukes Hospital

Little Horton Lane

Bradford BD5 0NA

Tel: 01274 365848

Email: sarah.cost@bradfordhospitals.nhs.uk

For further details visit: www.thecroakies.org.uk

10 Dec 2004 Photos

Photographs below were taken by Trevor (3rd from left) sitting next to his wife (2nd from left), who is next to Pikeman (Mike McNulty 1st on left) on at Croakies monthly meeting. It was Christmas time and Dr Vinod Joshi (Founder of the Mouth Cancer Foundation) was guest speaker.

Sarah Cost is the Macmillan Nurse in charge of the support group. Maurice is also seen pulling a cracker.

Guise and Dolls Support Group

Where patients, carers and relatives who are living with head and neck cancer can meet to share experiences and ideas.

3rd Monday in every month. From 1pm to 3pm in the day room of:

Blundell Ward

14th Floor of Guys Tower

Guys Hospital

Tel: 020 7188 5924

www.guiseanddolls.org.uk

Mid Yorkshire "Warblers" Head and Neck Cancer Group

Meeting place Wakefield

Activities Our group meets on the third Friday of every month to enjoy mutual emotional support, practical help and information in a supportive environment. The aim of the group is to offer support to laryngectomy, tracheotomy and any other person affected by head and neck cancer, including carers, spouses, relatives and friends. We aim to attract new members, raise public awareness about head and neck cancer and to take part in social activities and fundraising.

Telephone contacts

Helen Chadwick: 01924 213338 (Mon-Fri, 8am-4pm)

Nina Corfield: 01924 214291 (Tues-Fri)

Email

helen.chadwick2@midyorks.nhs.uk

Nina.corfield@wdpct.nhs.uk

Address

Ward 7, Pinderfields General Hospital, Aberford Road, Wakefield, West Yorkshire, WF1 4DG

Crokus Club

Peterborough Head and Neck Cancer Support Group is based in the Peterborough area and reaches out to a wide area of this region.

We offer support, friendship and information to other patients, friends and family affected by head and neck cancer.

The group meet monthly and we also make home and hospital visits pre and post operation.

Contact and information via our Facebook page (Crokus Club) email: crokusclub@hotmail.co.uk - and phone 01733 347 969 and 01733 205 768

HANDS

Head and Neck Dorset Support (HANDS) has been newly established in Dorset to give support, information and advice to patients and their families who have experienced head and neck cancer within the Dorset Cancer Network area

The group meeting every other month on the first Wednesday in Hamworthy Library, Poole, Dorset. From 5-7pm

For further details, please contact the Clinical Nurse Specialists at Poole Hospital NHS Foundation Trust via email:

claire.clark@poole.nhs.uk

karen.roberts@poole.nhs.uk

heidi.trotman@poole.nhs.uk

Head and Neck CNS

Tel 01202 442365 or 01202 442071

Ipswich Head & Neck Cancer Support Group

Patient Pathway DVD on their website http://www.theipswichheadandneckcsg.org.uk/

Sometime ago the groups committee decided it would be an idea to make a short film about the bi-monthly group meetings, as the idea grew we thought we might take this a bit further and include a few more details about Head and Neck Cancer. The final outcome was a complete film about the treatment pathway and beyond. Now, many months later we are due to start filming in the hospital in the middle of June. It has certainly been a learning curve for those involved, the planning has taken so much organisation non of which would have been possible without our chairperson Amanda Ford who has worked incredibly hard on the project. The film is being made by CSV Media who specialise in projects of this nature. The idea is that a copy of the film will be given to everyone who has a diagnosis of head and neck cancer and will show them what the treatment pathway through the hospital looks like. We all know how confusing  the information given to us can be and we hope that this film will take away some of those concerns. The film has been funded by 100%  donation and a list of those involved will be credited at the end of the film. We hope to show the film for the very first time at our group meeting in September.

At our group meeting on 5th Sept we saw the excellent preview of the DVD we have been working on for the last 12 months. It was very well done and an excellent tribute to all the hard work put in by Steve Spraggett and Amanda Ford of our group along with lots of the Medical staff and Doctors at the hospital. All gave of their time and energy free of charge which involved many hours and we are grateful to you all for this. When the finalised DVD is ready it will be given out to all newly diagnosed patients at the hospital so that it can show them what to expect and the proceedures that they might need. It is taken from a patients eye view and is very informative. Fundraising was done for this by Our Support Group and we received contributions from The Railway Pub & Klippen Pisser RC, The Mouth Cancer Foundation, The Clobber Swop (at Ipswich hospital), and The Ipswich Hospital NHS Charitable Trust. Thank you all for making this possible. We will keep you informed as to when this will be available to have.

Mouth Cancer Counselling Service

If you or someone close to you has been diagnosed with mouth cancer and you are finding it difficult to cope with the impact of the disease, you may find it helpful to talk to a specialist cancer counsellor about your fears and hopes.

The Cancer Counselling Trust provides a series of free, confidential sessions, both face to face and over the phone. You do not need a doctor's referral. To enquire about counselling please call 020 7704 1137 and talk to the counselling co-ordinator to see how you may be helped.

Please Note: This is a counselling service to people affected by cancer and does not provide medical information or advice.

UK Cancer Information and Support Centres

Macmillan has developed Cancer Information and Support Centres which are now open to the public. A member of staff or trained volunteer will guide you through the information and support options available. Find a centre near you.

Heads2gether

Heads2gether provides information and support for head and neck cancer patients, their carers, relatives and friends from from the John Radcliffe Hospital and The Radcliffe Infirmary in Oxford and The Royal Berkshire Hospital in Reading.

Face Fax

The group was established in June 2001 when it became apparent that local patients in the Northampton area with Head & Neck cancer, facial trauma or scarring had unmet healthcare needs in their journey towards recovery.  It provides information and support to patients and their carers.

Let's Face It

The international support network for people with facial disfigurement, their families, friends and professionals

Bradford Cancer Support

They are committed to offering a range of practical, social and emotional support, all free of charge to people whose lives have been affected by cancer in the Bradford Metropolitan District of West Yorkshire.

Adenoid Cystic Carcinoma Organization International (ACCOI)

ACCOI's email information group members share information and hope. All issues are discussed in an atmosphere of support. Current research, clinical trials, cancer facilities, alternative medicine, organizations that help with expenses for cancer treatment and other information relevant to Adenoid Cystic Carcinoma.

Headstart

Headstart is a local support network for patients, carers and staff, and is open to anyone who has undergone treatment for head and neck cancer. Family and friends are also welcome to attend.  The Headstart group is presently run by a multidisciplinary team within Queen Victoria NHS Foundation Trust in East Grinstead, the Kent Oncology Centre at Maidstone and and the Medway Maritime Hospital in Gillingham. They run social events and meetings and are always open to new ideas and ways to bring support.